Welcome to Feb WOW hasn't it gone fast but here is FEB challenge before I forget as I get too involved with STepilepsy LOL the craft challenges must go on!! It's Valentines day month too so I tried to use a variety so you can use on your Valentines Project
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Welcome to team Megan Stepilepsy 2025,
GOAL: together as a team raise as much needed funds together as a team for the Epilepsy Foundation Australia
HOW: recording our number of steps each day, treadmill, walking the dog, walking in the water how ever you can record you're steps
STARTS: NOW
FINISHES 1st December 2025
HELP RAISE AWARENESS: by using our hashtags, linking my social media page and blog where a Team T shirt soon coming, share a cuppa with friends buy ordering some personalized mugs
PRIZES
There will be ribbon and certificate prizes for
1st
2nd
3rd
Everyone who participates will get a certificate
Stay tuned on our facebook page for more updates
FAQS
How do I record my steps?
There are many pedometer apps you can download on any smart phone take a screen shot each day and post it to our facebook page and share you're progress
Welcome to Team Megan 2025 stay tuned how you can join in and help me raise awareness and much needed funds to help others living with epilepsy like myself.
Markets Update for February 2025
Feb is Booked OUT
Other Months this year are still available
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G'day everyone
I'm taking on the purple hero challenge to support epilepsy awareness. I am one of the recipient's who live with epilepsy everyday, this is following a stroke in 2015.
My STORY
One day I woke up just not feeling quite right I didn't know what it was but I knew something was up and it was not going to be good. I immediately called 000 and got the paramedics straight away, that was fine but after their observation they thought nothing off it and gave me some Panadol and said if nothing changes your welcome to call back. I did not know what the signs and symptoms of a stroke was, I'm thinking they did not know either.
However I did call them back, same crew and I had worsened they got me in the ambulance sirens blaring off to the hospital. I didn't even have to wait long at triage from what I remember. I remember going into the anesthetic room where they make you sign a form and put you under and I remember the nurse their saying she is having a major stroke and pointing out the signs. That's as far as I remember.
From there apparently 2-3 days later I woke up in ICU in the Royal Melbourne Hospital, they asked me do I know where I am I said Ballarat Base, nope I was wrong, I didn't believe them until the day they were able to wheel me out in a chair on to the balcony and I looked outside OK I'm in Melbourne I said. With many tubes still all over me.
I was then informed I would be there for a while to learn to, eat talk, walk and learn about life all over again and hope to regain some memory back, I was there for a good month before they transported me back to the Ballarat base for another week just for reassurance, they wanted me to attend rehab for another month or so but it was agreed I was stronger enough to rehab myself at home which was the best outcome..
I have had public seizures before in a shopping centre as well
To this day I physically struggle on the left and with deafness one ear is better then the other, walking one side is better than the other, but I carry on the best way I can and also since then I've learned about the correct medication I should be on and why for epilepsy and stroke and where to get further information should I need from the GP and epilepsy charities just like the one I supporting for March and if I can keep the page up all year I will as
$5 from each mug sold will be added to my page
$5 from each card sold will be added to my page
on top of completing the MARCH challenge together I hope we can reach our target then some
Learning to eat all over again after nearly having been fed through a tube nearly a month
I've been doing lots more mugs near 100 of them now and even had a special request come up too which is on my facebook page. its got a bit of swearing on please excuse the language but it's what the customer wanted
But here is another goodie I was pretty pleased with
Less talk, more Golfing
Today was such a fun day I got to try two different sports at the Badminton Centre and found out I like curling. It's been a bit slow posting my support days up I have been busy making mugs and creating more cricuts cards for my first market stall day experience 9th of February in Ararat
I started off with the Trikes
Today was a bitt of a fuddle day you know what it's like sometimes waiting for your GP appointment I don't mind waiting as I have a great GP just took up most of my support time but anyway it was all because I have issues with my top teeth from my stroke yes that long a go and now I'm getting the severe pain and went to hospital for it cause I couldn't manage the pain anymore. It's from when I was in hospital at the time of my stroke a couple of teeth were missing or shifted to the side to add big long tubes down my mouth but I survived. So now paying for the pain, and now I want my top teeth fixed. It's taking me a while to front up and now I want it and it's my choice I think its because I have great support workers on board now. That makes a world a difference if I didn't have them I'd still be on struggle street not knowing what to do.
Whilst we waited for the GP we had a lovely chat over a cuppa and beat the rain we did take the dog for a quick walk around the block dang it gorta remember those walking photos no matter where we go
I used my scooter of course
We were having a little giggle stick the pinkie out lol
Well today we accidentally forgot to take some photos of our walk to the lake and back with the dog but we will next walk thoe. He did a big long walk over 5km with my support worker and I was on the scooter.
But on the flip side I got some more mugs to design 3 boxes full these were pre ordered during the sales and they called me on Monday to pick them up and were already paid for at sale price bonus think I'll do it a lot like that more often.
I also cooked a lamb roast yesterday my support worker chopped the fresh vegis up for me and I did the rest after she went home
Many of you might think is it really worth all this trouble getting on the NDIS after getting a first glimpse of the application form and process. My answer absolutely!! it might not be the first time round or second time or as it was in my instance about the third time round. Just don't give up because when they see when you really need it and keep pushing you will be surprised how much you really do need the support after this long.
So where do we find the application
Click on the NDIS access Application Form or call or call 1800 800 110 and ask for the access form
We’ve been working on how we can improve the way we deliver the NDIS. We’ve spent time talking to participants, our staff, NDIS partners, providers and the disability community to work out the ways we can improve the experience people have with the Scheme.
Learn more on the new improvements websit .
If you think you are eligible for the NDIS, you can:
Find out how long this takes in our Participant Service Guarantee.
In some areas, we don’t have partners. In non-partner areas we recommend you contact us on 1800 800 110 to be supported to apply to the NDIS.
The NDIS is just one service system for Australians with disability, developmental delay or developmental concerns.
The disability supports provided through the NDIS complement, but don’t replace, mainstream or community services provided by other service systems in the general community, such as education, health, mental health services and community groups.
Our NDIS partners can help people and families learn about and access the supports available in their communit and supports available through the NDIS.
Reference; https://www.ndis.gov.au/applying-access-ndis/how-apply
Some of my helpful hints from personal experience when I first started my application are;
- Gather all of your medical reports from the past 3-5 years regarding your permanent disability including a letter from all specialists involved stating that your condition is permanent and won't change
- Even if you have to do the whole process again for the second time get them to write a follow up letter saying that nothing has changed and nothing will
-keep all records of blood tests, visits to GP how often you go if you needed support eg Taxi and transport, how often you have had falls if any document time, dates everything, if diabetic, make sure you keep a full record
-If you struggle in the kitchen with meals note it what you struggle with what you need help with anything around the house make note of it from day one.
Speak to a social worker from a charity organization who can possibly help you with your application and free home visits with meals etc in the mean time until your process is approved, speak to out patient services to see what they can offer, speak to an NDIS advocate anytime.
I hope this has helped you to start the process, remember there has been a few bad eggs in the NDIS don't let them discourage your disability journey.
Welcome to my link list of personal outings that I go on with my support workers it's basically a inspiration journal of my travels to inspire others what people on disability can do and even those able to be inspired as well. To inspire others to achieve their goals each link is dated so you can follow the journey too. Thanks for following.
January 2025
6th January 2025 - Monday - Trip to Maryborough
10th January 2025 - Friday - Goal to the lake and back on my scooter
13th January 2025 MONDAY - 5km walk with the dog roast lamb and more
15th January 2025 Wednesday- Visit to GP and cuppa and dog walks
17th January 2025 - Community sports fun Day
But before that I managed to make another birthday card
